Expand community engagement and advocacy in chronic viral hepatitis

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Community engagement and advocacy are important to drive development and improved service delivery for chronic viral hepatitis. Community engagement is defined as the process of working collaboratively with groups of people affiliated by proximity, interests, or circumstances to support their well-being.
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US Department of Health and Human Services
Principles of Community Engagement.

Appropriate community engagement can help reduce stigma, spread messages and inform the development of interventions.

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  • Shen K.
  • Yang N.S.
  • Huang W
  • et al.
A participatory intervention to reduce hepatitis B stigma among men who have sex with men in China: a cohort study.

J Viral Hepat. 2020; 27: 135-142

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Contributions of community-based participatory research to intervention research: the intersection of science and practice to improve health equity.

Am J Public Health. 2010; 100: S40-S46

Few hepatitis studies or programs have shown effective and sustained community engagement, especially in low- and middle-income countries (LMICs). To date, CBO contributions and advocacy efforts have focused on high-income settings;

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  • Zhou K
  • Fitzpatrick T.
  • Walsh N.
  • et al.
Interventions to optimize the continuum of care for chronic viral hepatitis: a systematic review and meta-analyses.

Lancet Infect Dis. 2016; 16: 1409-1422

however, the top-down strategies used in such contexts are often difficult to implement in LMICs due to structural, socioeconomic and cultural differences. The voices of people with viral hepatitis, including those of family members and communities with lived experiences of viral hepatitis, support the development of inclusive, effective and sustainable health services and health policies.

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